Sis Shafawati........Gone Forever

I'm really sad today caused I'm losing sis shafawati forever.

FISH study

Dr Baizura had taken my blood for Fish study and send to USM Bertam

3.01 kg

Today I weighted at 3.01 kg ... Alhamdulillah

2.83 kg

Today I weighted at 2.83 kg ... Alhamdulillah

Green light

Today I received a great news. Dr Teh has given me the green light to go home. Not now, but most probably before January 2008. But first, Mama have to stay here with me to familiarise with my machines & learn how to take care of me.

At the same time, we have to buy these things before I return home :
1. Oxygen concentrator
2. Pulse Oxymeter
3. Oxygen cylinder

Most probably the cost will be around RM 8,000. But hopefully, we can claim back the money from UiTM or the government, which should be enough savings to cover for Mama's one year unpaid leave.

The passing of Azraie

Today is a sad day for me. My good friend Azraie passed away this morning at 2.00 a.m. He has never left the hospital since his birth 13 months ago.

Please join me in reciting a prayer & al-Fatihah for him. May Allah s.w.t. bless him & put him in the beautiful Jannah.

Amin.

Opah's here

Opah came to my home this morning, with Pak Su Indra & Chik La. They'll be going back to Ipoh tomorrow, taking along Atah & Aiman.

Abah came to see me in the morning. Mama came later as she had to prepare for the family barberque tonight.


I was awake when Abah came in


Time for my milk & medication

Abah's turn

Mama's having some flu, so she couldn't come to see me. In case she'll infect me with it. So today Abah's turn to see me


Me ... sideways


Me ... from the top

My tummy

Mama, look ... my tummy's getting bigger

My pink shirt

Hey, look at my favorite pink shirt ... I like it so much

Ceremony in Parit Buntar

My family's in Parit Buntar today for my Pak Su Indra & Chik La's engagement ceremony.


Chik La looking pretty in white


Along & Kakak, together with Chik La & my cousins


Opah putting the engagement ring on Chik La's finger

Aidil Fitri 1428H

A message from Along :

"Hari ni hari yang paling gembira ... tapi sayang, Adik takde bersama kite. Along, Kakak, Wan dan Mak Tok dapat tengok Adik. Along rindu sangat nak dukung dan peluk Adik. Bila agaknye Along dapat buat camtu? Harap-harap tahun depan kita sekeluarga dapat beraya bersama-sama. Esok sepupu kita akan datang ke rumah kita. Nanti Adik dah sihat insya-Allah kita dapat main sama-sama. Along sentiasa doakan agar Adik cepat balik dan sihat cepat."

My family at my grandparent's in Gurun


My grandparent ... Wan & Mak Tok


Here's Kakak ... trying Wan's motorcycle


No "baju raya" for me this year

Mama came, then Abah came later

Mama came at 11 a.m and stayed until 12.30 p.m. Abah came later at 3 p.m.

By the way, I gained 10 grams today.


Big hand, little hand


This is the monitor for my heart rate, respiration rate, pulse, etc


And this is my nasal CPAP machine

"Shopping Sakan"

Today Abah & Mama came to see me in the morning. Both Along and Kakak are asleep in the car. My family's going shopping for this coming Hari Raya Aidil Fitri next Saturday. Not that they'll be celebrating like the previous years, maybe just a little bit only.


Here's Abah trying to make me sleep


No ... I'm not sleepy yet


I'm finally asleep ... at last

It's Friday again

Abah & Mama came to see me after breaking fast

Abah & Mama's here

Today is Abah's day off, so he took Mama to see me. I was sound asleep when they came in.


My playpen ...


My playpen from the side ... see sis Shafawati behind me there, she's been here for 2 years already


Time for my lunch


Mama, what are you doing there ?

Abah came tonight

Abah came to see me tonight in place of Mama who have to take care of Along who is down with fever.


Time for my milk ... with a little help from Abah


Me playing with the new toys Mama bought me

I'm 1 years old

Today is my 1st birthday ... but today also marks my 9th month away from my Abah, Mama, Along & Kakak.

Please keep praying for my health

Oh yeah. Almost forgot that Abah's having his PTK exam, again ... Wishing you all the best & hoping you'll pass with flying colours.

When Saturday comes by

Abah, where are you ?


Oh, there you are ...

Look who's here ?

Today my Wan (grandfather) and my Mak Tok (grandmother) came to visit my family at home. They came to break fast together with my family. Surely both of them misses me. They haven't seen me since February, the last time they were permitted to see me at PICU.

Better late than never

Abah & Mama came to see me quite late today. Along & Kakak waited in the car


I'm sooo tired today ... zzz ...

Mama is 29

Today is my Mama's 29th birthday.

I'm really sad that I'm not in her arms today. I miss my Mama

Another Sunday, another visit

Abah & Mama's here. Along's in school & Kakak's at the nursery.


Me in my headbox


Mama ... got milk ?

Moving ... again ?

I'm moving to the new hospital along Jalan Langgar, Alor Star. So this is my 4th hospital since my admission in Sungai Petani 7 months ago. Mama's here to tag along

Kakak is 2

Today is my Kakak's 2nd birthday.

"Do remember me when you're playing."

Love always,
your Adik

Wedding Anniversary

Today's my Abah & Mama's 7th wedding anniversary. I'm very sad that I'm not with them on this joyous occasion

1st day @ Hospital Alor Star

Today's my 1st day in Hospital Alor Star. Along & Kakak came along to see me.

Barium swallow today

I'm having my barium swallow test today. Wish me luck ...

Also wishing my loving Abah : "Happy 29th birthday. I love you"

Happy Saturday

It's Happy Saturday for me 'cause everyone's here to see me in Hospital Sungai Petani.


Me ... looking for Mama


My Kakak


My Along


Both of them, waiting for me

Bronchoscopy today

I'm having my bronchoscopy today. Wish me luck ...